Suddenly a Caregiver – Grieving (Part 2 of 4)

This article is part 2 of 4 of the chapter about grief from my soon to be released book – Suddenly a Caregiver. I was the primary family caregiver for my wife who battled brain cancer for nearly four years. The chapter – Grieving – shares the grieving and recovery experience. I hope my experience provides a source of learning for you.

Visit the book page and the Facebook page for book release information. The first 100 people that register will receive a coupon for a free eBook edition upon release.

Read Suddenly a Caregiver – Grieving (Part 1 of 4)

Grief Models

While different grief models exist, proposed by many experts, in 1969, Kübler-Ross published the first, widely accepted model of grief. This work provided insight into the emotions that people experience when facing death. Much literature references this model and serves as a basis for discussion, in many

Suddenly a Caregiverarticles and papers that followed its release. Later, other researchers extended or revised the model to include other people who experience grief, not only to those facing death. The model suggested a linear progression through the grief. Over time, a growing number of experts rejected the idea that people progress sequentially through the phases. As a result, some experts subsequently provided additional models to help understand grief and the affects that grief has on people.

Like me, you might discover parallels within your grief like those described in the model. Some describe the experience with these grief phases as overlapping at times with some phases extending for prolonged times. I know that grief is not a tidy or straightforward process. Some claim the grief experience feels more like the ball in a pinball machine bouncing from one stage to another with nothing described as sequential. We just need to keep in mind that the way each person experiences grief is unique to the individual. The one huge benefit of these models is that they provide some legitimization for the emotions we experience as individuals as we recover from a significant loss.

Because people reference the Kübler-Ross model most often, I will provide an overview of the following stages:

Shock and Denial

During the shock and denial phase, the shock of the loss is overwhelming. This occurs whether the loss is sudden or anticipated. The griever tends to deny that the loss will occur or has already occurred. This is a normal part of process for most people. The brain’s protection mechanisms help griever’s try to cope with the loss.

Anger

Another normal part of grief is the emotion of anger that surfaces because of the loss or the anticipation of the loss. The griever may blame family, friends, or even themselves. The grieved may even blame the person they lost. It is important that the griever express the emotions through sharing with a trusted person to avoid prolonged depression, self-destructive behaviors, health issues, or other negative effects. Depending on the depth of grief, this may lead to a friend, spiritual advisor, counselor, therapist, or physician.

Bargaining

In the bargaining phase, the grieved bargain with themselves, other people, or even with God to avert the loss. The grieved try to seek out options to change the reality of the loss.

Depression

For some, the depression phase is the feeling of sadness or despair, while for others this phase results in clinical depression. It is important to seek out support from a doctor, counselor, therapist, friend, or support group. This phase often leads to other problems, both physical and emotional, if not addressed. For some, this phase is often the longest phase of the grieving process. We pay this price as human beings because we care about others. In any major loss, it is not a sign of weakness to ask for support, in fact, this is an inevitable step, necessary in the grief recovery process. The griever then begins to deal with the often-painful memories and begins to learn to cope with the life changes resulting from the loss.

Acceptance

The acceptance phase results when the pain of the loss begins to lessen. The griever begins to look ahead. The acceptance of the loss causes the griever to move forward, embracing, or at least accepting the changes that the loss created in their lives. The depleted energy resulting from grief begins to increase steadily, as the weight of sadness and despair begin to lift from the griever’s shoulders.

Most people move through these phases of grief. The length of time a person spends during each phase depends on the circumstances and is unique to each individual. It is very easy to compare ourselves to other people, and judge that something might be wrong with us, when we do not handle the grief similarly. Just remember, you are unique. Take comfort that your grief recovery is also unique to you. I learned about the grieving process during my studies several years before Lynne’s diagnosis and death. That understanding helped me to recognize my emotions and my feelings as well as to accept that they were normal, and to be expected, during a significant loss.

I observed many families over time that lost a loved one. One of the most profound losses a person experiences is that of a spouse because of the relationship depth and the additional potential for economic losses. Based on discussions with those losing a spouse, I believe that losing a spouse affects the relationship within the social circles that the couple shared. I believe there are two contributing factors. First, the surviving spouse drawers closer to their own family for support. Second, others within the social circles struggle with the surviving spouse due to a partial loss of identify, that is, the transition from a “couple” to that of a  widow or widower. Observations also indicate an increased mortality rate among the surviving spouses, especially in older people due to the major stressor (Gass, 1987, as cited by Harvard Medical School).

In our society, most people recognize the inevitable nature of death but many rarely experience the process because societal norms tend to hide death behind the walls of health care facilities. This tends to deemphasize the process of grieving. This potentially decreases our ability cope. Sometimes during a terminal illness, a struggle exists between health care providers and families, regarding disclosure of all the facts surrounding the illness. Health care facilities and health care providers maintain various and differing ideologies. This is understandable because some people want the facts and others try to avoid the facts. This simply demonstrates the differences in the ability to cope with illness and the potentially impending death.

 

In the next part of this series, I will share information about anticipatory grief and preparing for grief.

Please share your comments, thoughts, and suggestions.

References

Harvard Medical School. (2011). Beyond the five stages of grief. The bereavement process is seldom linear and varies from one person to the next. The Harvard Mental Health Letter / From Harvard Medical School, 28(6), 3.

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